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gold2stg

Jul 07 2023

Sarah’s story

Sarah donated to her mother

The journey towards understanding the true meaning of being a living donor cannot really be described, a living donor becomes that chink of light, that hope, in a darkened room.

I became a donor to my beautiful mother in 2004 and I have never looked back. Perhaps, the fact that my elder sister 14 years prior had donated her kidney to our mother meant that it wasn’t anything special that I was doing, so following in my sister’s footsteps just felt natural.

Isobel Gordon was my living donor nurse specialist at Guy’s hospital, she took me under her wing and really helped me through the whole process. The care, support and help she gave me throughout is something that I will never forget as it helped to alleviate any fears and concerns that I had. I take this opportunity to say thank you to all the staff and doctors at Guy’s & St Thomas’ Hospital Foundation Trust you all deserve medals for the work you do.

It is extremely incredible how far surgeons have come in the field of live donor transplants. When I came forward as a donor I had open surgery, whereas now one has keyhole surgery which is less invasive.

Living donation is truly life changing for our loved ones. The freedom you give them from dialysis can’t be measured. If you are reading this and you have a mum like mine who needs a kidney transplant, don’t wait to be asked, offer to be her donor and transform her life! 

View the changing perceptions online exhibition

Written by gold2stg · Categorized: changing perceptions, Stories

Jun 25 2023

Vera & Lloyd

Before my sister’s wedding in 2013, I never knew who Lloyd Daniel was, all I knew was that he was my brother in law’s best friend.

Fast forward, months after the wedding, I heard through my sister that Lloyd was very ill, he had kidney failure, and needed a kidney transplant.  He was asked by his consultant if there was anybody in his family that might be willing to donate. My brother-in-law and my sister came forward to donate, when I heard about it and although I didn’t really know Lloyd I didn’t think twice and offered to be tested with the others.

My sister and I were both compatible, however for health reasons the doctors decided I would be a better match. That was it I was on my way to becoming a living kidney donor! Like many other Black living donors, I had never heard about living donation till then.

Today, thank God, we are both doing amazingly well, and I’m very proud of what I did.

It wasn’t an easy decision, my heart and mind were telling me to do it, but my family and friends were all against it. They couldn’t understand why I would risk my life to give someone the opportunity to live theirs, after all Lloyd was not family, he was not my partner he was not even someone I called a friend! Everyone thought I was crazy to put my life at risk for someone who was practically a stranger!

But nothing could stop my decision; I wanted to help him have a better life and give him back his hope. To be honest if Lloyd had died knowing that I could have saved his life and I didn’t, I don’t think that my life would ever be the same.

Celebrating Black living donors is just an inspirational event, it’s so wonderful to be in a room full of people who have given a kidney just like you, it’s amazing to see how proud they were, I felt that I shouldn’t be ashamed or try to hide this amazing act of generosity and kindness. It was also lovely to speak with black kidney patients and encourage them to talk with their loved ones about living donation.

Vera, an angel in disguise

Lloyd’s story

 I mean disguise in the true sense of the word, I never knew Vera at the time I was struggling with kidney failure, but her decision to donate to someone who was not a family member, or even a friend changed my life and now we are best friends for ever.

Since she donated her kidney to me, I have my quality of life back! I can now spend precious time with my loved ones, travel the world and continue to fulfil my passion of bodybuilding. When I was on dialysis this was not possible. I and my family will forever be grateful. Vera and I both now live healthily and are enjoying life to the max.! If you are brave enough to be a living donor for someone do it! you will be transforming someone’s life.

Written by gold2stg · Categorized: Stories

Jun 25 2023

Derricka & Derrick

When Derricka Simpson’s dad Derrick was diagnosed with end-stage kidney failure, the 20-year-old stepped in to become his living donor.

Derricka Simpson’s life changed in June 2018 when she learnt that her father had end-stage kidney failure. 

Rather than see him go on dialysis she immediately decided to become his living donor – a brave and selfless undertaking for a 20-year-old woman. 

Derricka underwent a series of rigorous physical and psychological tests before both she successfully donated in November 2019.

I recorded my entire journey and I’m be sharing it – with the hopes of inspiring and supporting other families that are affected by renal diseases.

Here’s an insight of a living kidney donor journey on surgery day.

Written by gold2stg · Categorized: Stories · Tagged: donor story

Jun 25 2023

Paul & Madge’s story

Many brothers and sisters are close – but Madge and Paul Reynolds share a special bond that very few others do.

Five years ago Paul donated one of his kidneys to Madge so that she could continue to live a normal life after her own kidneys failed. The alarm had been raised a further five years previously, when Walsall group exercise teacher Madge was pregnant with daughter Scarlett, now 10.

Protein showed up in a routine urine sample and she was referred to the Queen Elizabeth Hospital Birmingham (QEHB), where tests revealed that she was suffering from IgA Nephropathy. With this condition the antibody Immunoglobulin A settles in the kidney causing inflammation – the body’s own immune system is effectively damaging the kidney.

However, it is one of the less severe kidney diseases, usually continuing unchanged for many years or sometimes even disappearing over time with kidney failure only developing in a minority of cases.

Madge, now aged 49, said: “I remember the doctors told me that if you are going to have a kidney condition, this was the one to have, because it could be up to 20 years down the line before you may need a transplant.”

One of the unlucky ones

Madge was one of the unlucky ones, though, and within five years her kidney function had fallen to just five percent – with doctors astonished that she was managing without regular dialysis.

“When I was told I needed a transplant, I just burst into tears,” she said. “They told me I needed to talk to my family about the live donor programme. That was the toughest moment.”

Madge, living kidney recipient

Remarkably, Paul and Madge’s three sisters – Janice, Joanne and Jill – all turned out to be compatible donors but Paul insisted that he would be the one to give up a kidney – to prevent his other sisters possibly jeopardising plans to have children in the future.

Paul, who is a telecomms consultant now based in Newcastle-upon-Tyne, went through further tests and eventually a date was set for the transplant – January 24, 2011.

Now, almost five years later, Madge has been re-admitted to QEHB once when she picked up an infection but otherwise has had no issues. She still teaches exercise five days a week and is determined to live life to the full. She has appointments at the hospital every four months and has to plan life around the daily cocktail of more than 30 tablets but has a hugely positive outlook.

“I know I’m under the care of the QE for the rest of my life,” she said. “But I’m living a good life and I can’t complain. I’ve got the scars to prove what I’ve been through, but that’s a small price to pay.

“My brother’s given me a gift and I’ve now got a life to live and I am enjoying it. Life is good after a transplant. I could have been going three or four times a week having dialysis – but my life isn’t like that and that’s thanks to Paul.

“We are close and this has brought us closer. I class my brother as my hero and I am very, very thankful and that’s why I live my life to the full. If I didn’t it would be wasting his gift.

Celebrate anniversary of my transplant every year

“We go out on the anniversary of the transplant every year. March 7 is when I was born but 24 January, 2011, is the day that I was reborn. That’s the day when my life changed because of that transplant.”

Paul, aged 46, had no hesitation in volunteering when Madge spoke to him about the possibility of being a donor.

“My only concern was for Madge and her daughter Scarlett, she needed a healthy Mum,” he said.

“Health wise, I’d never had any problems and my priority was to do something to help Madge. It was my decision. From the day she first told me I had insisted I would do it – and that didn’t change when our other sisters turned out to be compatible.”

paul, living kidney donor

And Paul insists he had no worries about the operation or facing the rest of his own life with just one kidney.

“The only time I got nervous was in the holding area before the transplant. But before I knew it I was being woken up in recovery,” he went on.

“It all went very well and I have had no problems since. I’m back to normality, really. I just have an annual check up to make sure my remaining kidney is fine. There are plenty of people out there who cope with one kidney.”

And in National Transplant Week Paul has urged people – especially in the black and Asian community, where there is often more reluctance – to sign up to the donor register and possibly change someone else’s life.

Giving the gift of life is a great achievement

“I’ve given that gift of life and you can’t do more than that,” he said. “What a great achievement. There aren’t many people who will have that as a legacy.

“Okay, I did it for my sister, but if the opportunity is there for you to make a real difference to someone else’s life, why not do it?”

Written by gold2stg · Categorized: Stories · Tagged: donor story

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